We all need help! Let’s be there for one another!
So this morning I woke up and been seeing so many of my Sarcoidosis family dealing with some truly tough problems. I want you to know I feel you. I understand. Most of you know that I am too dealing with many health issues also.
But just because we are fighting so hard against these terrible diseases, I am still here for you . If I don’t answer right away I promise I will get back to you!
Remember we are all family! I truly love my Sarcoidosis and chronic illness and rare disease families!
We love together, we hurt together but #YOUARENOTALONE!
I am truly blessed and inspired by my Sarcoidosis and Chronic Illness and Rare Disease families!
I know it is scary at times, believe me I do! There have been many days I cry!
I have been seeing so many posts lately, especially my Sarcoidosis family that they have been having a tough time, I am so sad for you all, but don’t take my sadness as pity. I don’t think you need pity! I believe you all need LOVE AND SUPPORT. If that isn’t from your biological family. WE ARE HERE!! DON’T WORRY IF YOU THINK WE HAVE TOO MUCH ON OUR PLATE! Odds are we are just as happy and need to hear from you too.
So the main reason I am writing this is to say REACH OUT and remember #YOUARENOTALONE!
I TRULY LOVE YOU ALL!!! I NEED TO FOLLOW MY OWN ADVICE ALSO!!!
I hope I don’t offend anyone, just partially venting and really just want to help!!
I am writing this because I have been seeing so many people, especially in my Sarcoidosis Family, suffering. I just wanted to let them know not to give up as well as we, Sardcoidosis, Rare Disease, Chronic Illness families are here for each other! I am not a martyr at all! I just get so sad seeing people give up or feeling alone!
I know many of us are doing our best, but I know I am not doing my best because too many people are still committing suicide, too many people are feeling all alone! Yes I hold myself to very high standards and I am a realist that I won’t touch everyone! But I feel that we as communities can work together to help each other out. I may be ranting but I am truly sad to see too many people not only suffer physically but just as important they are suffering mentally, which sometimes is worse!
Do I have a solution? NO! Do I have ideas? Yes! As do most of you. So let’s try to work together! We do have a voice, we also have solutions! I personally know that my health is declining, I don’t want pity for that. I want to make a difference, as do most of the community.
It is crazy, but you know what I found to make the biggest difference in my community? Two things:
1- Just a reaffirmation” I am here for You!”
2- Let them know #YOUARENOTALONE !
I am truly sad to see how many people in our communities that are more sad about the mental anguish of feeling alone!!
This is not a post to put me in a spotlight either. The spotlight should be on our communities and those who need our help!!
I feel we need to figure out what we can do as a community and more importantly as a family! I don’t know if I can do this by myself. As a matter of fact I know I can’t! I am truly asking all of you for your support!!
As some of you may know we have started new online (virtual) Sarcoidosis Support Group Meetings. This is open for all Sarcoidosis patients and caregivers to discuss with others all the rough times and the good times and information about Sarcoidosis. We started this in December. We have our meetings on the first Tuesday and the third Thursday of the month. This is a safe place to discuss anything you may feel. Here is the start page with the faces and bios of our moderators. If you ever feel down don’t be afraid to contact us. We are here for you. Not just at the times of the meeting but we will help as much as possible anytime. If you feel you need more counseling please contact me for some counseling help.
I have a special link that will help with some of the costs for an online counselor.
Here is our start page for our National Online (Virtual) Support Group Meeting! You get a chance to see who our moderators are. If you click on them you will get to see their Bios as well! Thank you for all of your support!