Just wanted to let you all know I actually got a story that was amazingly written by Nate Davis and was published by a website called Thrive Global, who is none other run by Arianna Huffington!! If you don’t know who she is check out The Huffington Post!!
You don’t know what this means to get my story out there for all of the rare disease community! I am beyond happy!
I have been through so many rough times in the past 6-8 months that I really want to make sure we get our story told and raise awareness for the whole rare disease community and especially for the Adult Rare Disease Community! We need our stories to be heard too!!
Here is the link to the story: